Feeding Tube Awareness Week! It’s been a crazy week I haven’t had time to post this. This is a big issue for most cancer kids, with so many medications and lost of appetite they end up with aka #Tubie” in the nose. This runs from the nose to the stomach and is replace monthly at the hospital. It’s necessary but also causes other medical issues and discomfort for kids. Zoe had one in her nose, as it started to cause complications it was surgically place in her stomach. As she was growing up she preferred it in her stomach, especially because kids made fun of her. It naturally caused a lot of attention some curious and some just disrespectful , I didn’t play that nonsense! They were educated and put in their place. It’s unfortunate that even adults thought it was ok to make a sick child uncomfortable. Even to this day, foundation or no foundation I don’t tolerate nonsense and rude comments people get blocked! This space is also to help others understand what the kids go through it’s not just a hospital visit and that’s it. It’s a whole lifestyle change and this is why we fight for them to have some normalcy. On the website is stories to share , “The Untold Journey” the moments that people over look the moments that really is a game changer! What we experienced in 4 years felt like a life time!